First, watch the video from Diabetes Canada…because it will figure into this:
So, here is the thing….as you can probably guess…I have diabetes. In the letter I wrote below, along with the stuff on my page about diabetes, I spoke about being diagnosed and about the way that I have lived with it and some of the things that have come from it.
Although I try to put a funny spin on it, this video is often more the truth for pretty much everyone with diabetes – myself included.
Not that long ago, I had a friend question why I was not living in an apartment on my own and I tried to explain to him about the difficulties I see about that…many of them are things that I worry about because of my diabetes. Things like my blood sugar going so low or high that I am not able to treat that situation. Things like being so sick that I can’t move and need to be in the hospital but have no way of contacting people to tell them.
When trying to explain this, I get blank stares. People don’t understand. And I don’t expect them to see things through my eyes – after all, they don’t live with this each and every day. Sure, they may have experience with it in some form or another, but unless you have truly walked around as a diabetic, you will never understand the same way that we do…and as I told them when they said they did, I would not wish it on anyone.
But, at the same time, we need to get the information out there. It can be really scary when you have to go to the emergency room due to your diabetes and the medical staff don’t know anything about it. I have personally had times when I was in the hospital that a nurse on a ward didn’t want to give me my insulin because the doctor hadn’t ordered it. I or my family had to fight with the medical staff to give me a life-sustaining medication! I have even had to put up a fight with my provincial government to get one of my insulin’s declared a life-saving drug. It’s not like I take insulin for the fun of it – I’d much rather never have to see another needed again.
With all of the talk about the Canadian Diabetes Association re-branding itself as Diabetes Canada, the local TV stations have had people on to talk about the new brand. Take a look at the video here before continuing on in this post.
The person interviewed is talking about support systems and I honestly would love to see one started up here. I have mentioned in the past that there does not seem to be anything out there…and as it stands right now, I still have yet to see anything come about to change this. I was on the Diabetes Canada – Saskatchewan Facebook page and from what I can tell, they had a party to launch the new brand (ok…that is fine) but should they not have tried to inform people that they were doing this? I only found out about it because the Diabetes Online Community (DOC) on Facebook and Twitter posted about it. Otherwise, I would have no idea what was going on. This is something that really amazes me because at one time they were really good at sharing information…I wonder what has happened since then?
As I have been writing this, I have realised that the last time I really even know of someone else with diabetes (specifically, type 1 diabetes) was when I was about 10 years old (over 20 years ago). They talk in the videos about how you often feel like you are the only one out there – well, that is true. Even though I know there are others, I can’t quantify it as true because I have never even had the opportunity to meet them. This seems troubling to me and it should to them as well.
In terms of other thoughts about living with diabetes, I would love to have a full nights sleep and yet I can’t remember the last time that happened. I’ve talked to my doctor about it and no one can figure it out. I personally think it has to do with the constant dealing with diabetes, because it doesn’t take a break and so neither does our mind.
I don’t completely know where I was going with this whole post but I felt like I needed to make it. Maybe it was just to get these thoughts out there? No matter what the reason, I hope somehow that it helps.